National Haemophilia Database

We routinely submit essential information about all our registered patients with bleeding disorders to the UK National Haemophilia Database (NHD).

The NHD was established in 1968 and holds information on all people registered with a bleeding disorder within the UK. It is managed by the UK Haemophilia Centre Doctor’s Organisation (UKHCDO). There are 2 aims, and these are to:

• report back to the NHS to support disease monitoring and healthcare planning
• support research into bleeding disorders, complications, and treatment outcomes, to improve future care

All data is held securely, and any data that is shared with any third party has any identifying details removed. The UKHCDO have approval from the Department of Health and the Health Research Authority to collect, process and store patient data without consent. However, you can opt out of your data being used for research activity.