Neurofibromatosis

Neurofibromatosis type 2 (NF2) schwannomatosis clinic

You can only send texts to the mobile number.

We answer emails Monday to Friday, 9am to 5pm

Location: neurofibromatosis service, department of neurology, 1st floor, Southwark Wing, Guy's Hospital, Great Maze Pond, London SE1 9RT

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Time: Monday and Wednesday

At this clinic we provide treatment for NF2 schwannomatosis.

The clinic includes:

If you have any questions or concerns between your appointments, please contact the clinical nurse specialist.

Every year you'll need:

Every 3 years you'll need an MRI scan of the spine.

At your annual review we need information from your recent scans, tests and other appointments so that we can discuss your needs with you.

Please arrange and go to these other appointments before your review.

arrange to have your MRI scans at least 4 weeks before your appointment. You'll get a message or call from our MRI service to arrange your scans
attend your hearing (audiology) appointments
attend your other clinic appointments, or let us know at least 4 weeks in advance if you need to change them
arrange patient transport through your GP or contact our patient transport service at least 5 days before your appointment, if you need it

At your yearly review we'll:

discuss your test results with you
discuss your treatment, including treatment of vestibular schwannomas or meningiomas
give you advice about your symptoms
arrange any tests and investigations you need