The service provides support for people aged 16 or over whose neurofibromatosis (NF) or schwannomatosis is affecting their mood or quality of life.
The service is provided in the NF Centre at Guy's Hospital. It is run by psychologists and is free of charge.
To access our psychology service, please ask any member of the NF team.
How psychology can help
Having a condition like NF or schwannomatosis can affect you in lots of different ways, including:
- feeling worried, angry, stressed or sad about your condition
- worrying about the future
- struggling to cope with changes in your appearance
- pain or tiredness affecting what you can do each day
One-to-one talking therapy can help with difficult feelings, and help you manage living with these conditions.
Psychologists are trained to help you understand any unhelpful thinking patterns. They can help you to think differently about problems and to try new coping strategies.
Psychologists are trained to use talking therapies. They are registered with the Health and Care Professions Council (HCPC).
Psychologists are not medical doctors like psychiatrists. They do not prescribe medicines.
You might find it helpful to come to a group. The groups are designed to give you information about the condition, help you learn ways of managing different symptoms, and give you a chance to meet others.
Your first appointment
Your first appointment can last up to 1 hour.
We will ask questions about how you are, how you are coping and what you are hoping to have help with. It is also an opportunity for you to get to know the psychologist.
At the end of the assessment we will agree a plan together. This might be to get some more regular help from us (one-to-one sessions, groups, or the online course) or we might help you find another service if that is more appropriate.
People get the most help from talking to a psychologist if they can come regularly, every few weeks. We may also be able to offer online appointments, where we talk using a video call.
Sharing what we talk about
It is often useful to share some information with the NF team. This is so they can support your physical and mental health as best as possible.
You can always ask us to keep certain things confidential.
If we are ever worried that you or someone that you know is at risk or unsafe then we have a duty to tell other professionals.
We will explain how we record and share information about you in more detail at your first appointment.